For families living with neurodegenerative disease, the hardest part is not always the diagnosis. It is the slow erosion that follows: memory fading, personality shifting, independence shrinking. It unfolds quietly. First, forgotten appointments. Then repeated questions. Then moments when a familiar face no longer feels familiar. The illness does not isolate itself to one body. It rearranges the lives around it. Partners become caregivers. Children become decision-makers. Conversations grow shorter. Patience grows thinner. Guilt creeps in, for being tired, for wishing things were easier, for missing the person who is still physically there. Neurodegeneration is rarely a single patient story.…

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